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Jesy Nelson says her heart ‘feels super heavy’ despite huge SMA update

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Jesy Nelson says her heart 'feels super heavy' despite huge SMA update
Jesy Nelson says it’s ‘bittersweet’ to see progress made towards SMA screenings outside England (Picture: Instagram)

Former Little Mix singer Jesy Nelson has admitted it’s ‘bittersweet’ seeing progress being made in the fight for babies to be screened for spinal muscular atrophy (SMA).

It has been announced that Scotland will be the first part of the UK to screen babies for the rare muscle disease that Jesy’s daughters also have.

The 34-year-old star and her now ex-fiance, Zion Foster, announced earlier this year that her twins, Ocean Jade and Story Monroe, were diagnosed with the rare genetic condition known as SMA, which causes progressive muscle wasting.

She has since campaigned for all babies to be screened for it, as early treatment can help avoid some of the most devastating effects.

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In a post on her Instagram Story on Monday, the Boyz hitmaker said: ‘Today my heart feels super heavy. It’s a very bittersweet moment knowing that Scotland had become the first UK nation to screen babies for SMA.

‘We’re so close yet so far.

Jesy Nelson says her heart 'feels super heavy' despite huge SMA update
She released a statement after the news that Scotland would begin screening babies for the rare muscular disease (Picture: Instagram)

‘I will never be able to understand why we still do not test for it here in England.’

According to the NHS, the condition causes muscle weakness, movement problems, breathing and swallowing difficulties, muscle tremors, and bone and joint problems.

Jesy said in January that her babies’ diagnosis would mean they are unlikely ever to be able to walk or regain their neck strength.

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She has also previously said their prognosis means they are unlikely to make it to their third birthday, and in her newest update, revealed they had been fitted with leg splints to support their joints.

Her twins have had treatment, a one-off infusion that puts a missing gene back into their bodies to stop other muscles from dying; however, it does not help regain any muscles that have already died.

She continued: ‘To know that my girls lives and so many other children in England could look so different if this had been here for them.

Jesy Nelson Instagram
Jesy is a proud mum to twins Ocean Jade and Story Monroe (Picture: Instagram)
Jesy Nelson instagram
Earlier this year, she was told that it was unlikely her daughters would ever walk (Picture: Instagram)

‘But nevertheless I will keep fighting and pushing for change because nobody should ever have to go through this heartache.’

From today, all parents in Scotland will be offered SMA screening for their newborns, on about day four after birth.

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After Jesy’s twins’ diagnosis, she launched a petition to get screening for SMA added to the newborn blood spot screening test, also known as the heel-prick test, which screens for serious health conditions.

The petition secured more than 100,000 signatures, which means it will be considered for a debate in the House of Commons.

Continuing her activism, she also became a patron of the charity Spinal Muscular Atrophy UK after meeting Health Secretary Wes Streeting earlier this year to speak about the life-changing impact early detection of the condition could have had on her twins.

Announcing her new role last month, the pop star wrote on social media that she felt ‘incredibly proud’ and it meant ‘so much to [her]’.

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Editorial use only Mandatory Credit: Photo by Ken McKay/ITV/Shutterstock (15410904y) Jesy Nelson, Zion Foster, introduce us to their baby girls, Ocean Jade and Story Monroe, 'This Morning' TV show, London, UK - 23 Jul 2025
Jesy shares her children with ex-partner Zion Foster (Picture: Ken McKay/ITV/Shutterstock)
Still from Jesy Nelson: Life After Little Mix.
She has vowed not to stop speaking out until ‘something changes’ (Picture: Amazon Prime Video)

‘I’ve been deeply touched by the SMA community from the strength of the children, the resilience of the families, and the love that surrounds them every single day,’ Jesy penned.

‘I’ll be using my voice to keep raising awareness not only for my girls, but to support families going through the same experiences, and campaigning for the SMA test to be added to the newborn screening heel-prick test so more babies can get the help they need as early as possible.’

Jesy has made it known that she is ‘not going to stop’ talking about SMA until ‘something changes’ and has been inundated with well-wishes since taking Ocean and Story’s diagnoses public.

Symptoms of SMA

As explained by the NHS, symptoms of spinal muscular atrophy (SMA) affect everyone differently but can include:

  • muscle weakness – such as floppy or weak arms and legs
  • movement problems – such as difficulty sitting up, crawling or walking
  • problems with breathing or swallowing
  • twitching or shaking muscles (tremors)
  • bone and joint problems – such as an unusually curved spine (scoliosis)

These symptoms are most often noticed in babies and toddlers, but they can also start in teenagers and adults.

SMA does not affect intelligence or cause learning disabilities.

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This has included messages from her former bandmates, Leigh-Anne Pinnock, Perrie Edwards, and Jade Thirlwall, with Jesy admitting it has ‘healed’ her to be back in touch after several years of not speaking.

On The Smallzy Show, Leigh-Anne, who has her own twin daughters, said recently that she and the other two members ‘obviously’ all reached out to Jesy when the news broke in January.

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‘I think she’s really incredible for spreading that awareness,’ the Don’t Say Love singer added.

Mandatory Credit: Photo by Ibl/Shutterstock (8859182a) Little Mix - Perrie Edwards, Jesy Nelson, Leigh-Anne Pinnock and Jade Thirlwall Little Mix portrait session, Stockholm, Sweden - 06 Jun 2017
Jesy’s ex-bandmates – Perrie Edwards, Leigh-Anne Pinnock, and Jade Thirlwall – have all ‘reached out’ to her this year following their feud (Picture: Ibl/Shutterstock)

Jesy also confirmed to Alison Hammond and Dermot O’Leary on This Morning that it was ‘lovely’ to hear from them.

‘They’re your sisters, aren’t they?’, Dermot asked.

‘Of course!’, Jesy agreed. ‘We were genuinely best friends, and things happen in life; it doesn’t always go how you think it’s going to, but three of us are mums now, I think we’ve all had time to heal; it’s been five, nearly six years, and I think it’s just one of those things that takes time.’

‘Who knows what will happen,’ she said of the possibility of reuniting, having left the group in 2020. ‘But since they’ve been reaching out, it’s lovely. It’s definitely healed a part of me, for sure.’

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Man facing court after Air Support Team tracked ‘dangerous’ scrambler rider in West Belfast

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Belfast Live

The man was spotted driving dangerously in West Belfast by PSNI officers

A teenager has been charged after he was observed driving a scrambler in a dangerous manner by PSNI Air Support Team officers on Sunday afternoon, March 22.

The 19-year-old man has been charged to court with several offences, including dangerous driving. He was spotted driving the scrambler dangerously in the Glen Road area before being arrested.

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The man was also charged with resisting police, using a motor vehicle without insurance, no driving licence and failing to wear protective headgear.

READ MORE: PSNI appeal after charity box stolen from Portadown Train StationREAD MORE: Motorcyclist in critical condition after Lisburn Road crash

He is due to appear before Belfast Magistrates’ Court on Friday, April 17.As is usual procedure, PSNI said the charges will be reviewed by the Public Prosecution Service.

For all the latest news, visit the Belfast Live homepage here and sign up to our daily newsletter here.

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Armed patrols deployed to protect London Jewish sites as Met Police chief condemns ‘attack on us all’

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Armed patrols deployed to protect London Jewish sites as Met Police chief condemns ‘attack on us all’

Meanwhile, at the rally organised by Our Fight UK Gideon Falter, chief executive of the Campaign Against Antisemitism, told the crowd : “Burning that ambulance service down, waiting for a moment when all four of its ambulances were in one place, not on call, it’s premeditated, it’s calculated, it’s despicable.”

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Sophie Habboo on moment she ‘didn’t want to film’ that made final cut of Disney series

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The Made in Chelsea star’s new Disney+ parenting documentary is just days away from release

Made in Chelsea stars Sophie Habboo and Jamie Laing are making their pregnancy journey public in an eye-opening new Disney+ documentary that releases in a matter of days.

Raising Chelsea charts the couple’s experience preparing for the arrival of their new baby through to the labour itself across three episodes. The official synopsis reads: “An intimate three-part series following the former Made in Chelsea stars, Jamie Laing and Sophie Habboo, as they face the messy, scary and hilarious reality of becoming parents.

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“Pregnancy begins with joy, before panic quickly sets in, as medical jargon, home renovations and family opinions pile up. Fun-loving, workaholic Jamie, says he’s the boy who won’t grow up and struggles to see himself in the role of dad.

“Meanwhile Sophie balances career highs and the thrill of becoming a mum, with raging hormones and fears of maternity leave and motherhood impacting her career. Jamie and Sophie run headlong into the drama of labour to finally meet their baby – and with family and friends never far away, they laugh and cry their way through the joy and the chaos.”

A release date for the new series has been announced today (March 24), with the series landing on the streaming platform on April 2. However, ahead of its release, the couple revealed there was one moment that features in the series that they had never anticipated including.

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“We always have this struggle in our relationship with the podcast, with social media, online, everything. Jamie would want to share every single thing, and I more so find that a little bit scary,” Sophie admitted. “However, with this TV show, after we started filming, we quickly realised, well, I realised, that it wasn’t going to work unless we showed everything.”

She continued: “And with the birth scene, we really didn’t expect to go in there. I didn’t actually want to film that, but it’s there and it’s real and that is the story and that is what happened. I’ve just gone for it.”

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Jamie was quick to jump in, adding: “I didn’t force Sophie to film the birth scene,” as his wife went on to share the sweet reason she wanted to keep it in.

“What actually happened was my anaesthetist took my phone and filmed the whole thing! When I’d given birth and we were looking through the photos, we were like, ‘Oh my God, the whole thing’s been filmed’,” she recalled.

“And actually, it made us feel really emotional and obviously it was the greatest day of our lives. We thought ‘Do you know what? It happens, it’s real life’ and we put it in there.”

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The couple became parents to baby Ziggy in December following a love story that began on reality series Made in Chelsea. Following years of dating, Jamie proposed at the Rosewood London hotel in December 2021 – the same spot where they had their first date.

Raising Chelsea will be available to stream on Disney+ from April 2.

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Corrie fans issue same ‘plea’ in Todd and Theo ‘had enough’ admission

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Manchester Evening News

Fans of the ITV soap are hoping that soap bosses end the storyline soon

Coronation Street fans have issued the same plea for Todd Grimshaw and Theo Silverton as they’ve “had enough”.

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Ever since Theo Silverton was introduced to the cobbles of Weatherfield last year, his character has left a sour taste in many Coronation Street viewers mouths as his behaviour continues to escalate dangerously.

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With Todd Grimshaw falling head over heels for Theo, it appeared the couple could resolve the issues Theo faced from his previous marriage. However, Theo consistently lashed out and belittled Todd, leaving him to become a shell of his former self.

In the lead up to Corriedale, Todd finally confided in good friend Billy Mayhew who saw footage of Theo attacking Todd in their flat. Offering Todd a safe space, he promised to get him back home and away from Theo.

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However, as the events of that night unfolded Theo made sure Billy wouldn’t escape the burning minibus, and Todd was left with no one to protect him.

Over recent episodes, Theo decided to break things off with Todd but still tracked him on his phone to show up wherever Todd was as a form of control. During Monday’s (March 23) installment, Todd woke up drowsy after Theo slipped drugs into his drink, and felt ashamed when he realised he’d missed the marathon he was running in memory of Billy and Paul.

Theo found Todd in the corner shop and gloated that he’d managed to get a medal, as he promised that he’d tell everyone a lie to save Todd from the embarrassment.

Later, Theo pleaded with Todd to take him back, and unfortunately Todd wasted no time in accepting the offer, relieved to have Theo back in his life.

Over on X (formerly known as Twitter), viewers expressed their frustration over the situation as @kliceanicole_xo wrote: “i wish this Theo & Todd situation would come to an end now i honestly can’t deal with it at all”.

@lornawatts added: “Please let Theo be taken down soon and punished, same with Megan” as @cupofteakim penned: “why has no one caught on about theo yet? every time they’re around each other in public todd has a face like a slapped arse. i’ve had enough of this storyline now ffs”.

Another viewer, @xxalicia89 expressed the same annoyance over the storyline and added: “Can’t wait for Theo to get exposed next week”.

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Music festivals made more accessible for disabled fans

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Music festivals made more accessible for disabled fans

The inclusion of sensory calm spaces at all festivals has also been introduced, along with compulsory disability awareness and inclusion training, and a mystery shopper system where disabled participants attend selected festivals and assess the accessible facilities available.

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Norton’s Huw Owen jailed for murder of Julian Hargreaves in Staithes

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Huw Owen jailed for murder of Julian Hargreaves in Staithes

Huw Owen was at the centre of a manhunt after leaving his victim, Julian Hargreaves, lying on the floor of his home in Staithes overnight, alone and unable to move after punching and kicking him repeatedly before hitting him with a lamp.

Owen, 42, from Cornucopia Close in Norton, was jailed today and told he will serve a minimum of 16 years and 110 days for killing Mr Hargreaves.

Mr Hargreaves’ brother Jonathan raised the alarm on March 14, 2024, after finding him on the floor of his living room with two black eyes and a small cut to the top of his head. He believed he had been there for a total of 14 hours.

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At this point Mr Hargreaves was able to name Owen as the person who had assaulted him repeatedly and struck him over the head with a lamp.

He was taken to hospital but did not recover and died three weeks later on April 4, 2024.


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The investigation found that Owen had attacked his victim on the evening of March 13, 2024, and fled, leaving him on the floor.

CCTV footage showed Owen hiding from police near the scene the following day, peering out to see what was happening, while officers worked at the scene.

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After a large scale man-hunt, Owen was located in Newcastle on April 10, 2024 and arrested for murder.

Owen pleaded not guilty on August 8 last year but was found guilty by a jury at Leeds Crown Court on Friday, February 20, 2026.

His co-accused, who was also charged with murder, was found not guilty.

Mr Hargreaves had medical vulnerabilities and pre-existing conditions, but the court heard there was a direct and substantial link between the head trauma and his death.

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Medical experts concluded that he had been unlawfully killed.

After sentencing, Police Staff Investigator Paul Thompson, of Scarborough and Ryedale CID said: “This was a calculated and sustained brutal attack, verging on torture, on a vulnerable man.

“Callously, Julian was left lying on the floor overnight, alone and unable to move.

“Understandably, this incident has had a traumatic effect on both Julian’s family and the local community of Staithes. Julian was well known and liked, and his death will leave a lasting impact on the local tight-knit community.”

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In a Victim Personal Statements, read our in court, Jonathan Hargreaves said: “It’s been almost two years since the death of my brother Julian, and hardly a day goes by when I don’t remember the sight of him laying helplessly on the floor of his house in Staithes.

“I knew something was wrong as I found his door unlocked but was shocked at what I saw. To see him unable to move and helpless was beyond upsetting.

“I can still hear his voice, and it saddens me to think that I will never be able to see him or speak to him again.

“I am grateful for all the help of the NHS for looking after my brother and the care and commitment of all the police officers that have kept me, and my mother appraised throughout, without whom I am not sure we would have managed.”

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Mr Hargreaves’ mother Jackie Hargreaves told the court, in her victim statement: “I don’t think a day has gone by, since his death, that I have not cried at his loss and the way he was killed.

“I know that Julian was a poorly man but know he would have been alive today.”

His nephew added: “Not having him in our lives this last two years has felt like walking in a dark hole. Not being able to climb out of that hole, my heart is and always will be shattered and incomplete – like that of my extended family.”

The senior investigating officer for the case, Detective Chief Inspector Tim Bentley said: “This has been a complex murder investigation – a long and difficult case to investigate due to Julian’s poor health prior to the assault, but I hope today’s result offers some comfort to Julian’s family that justice has been done, and that they can now move forward the best they can.”

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“The complexity of this case cannot be underestimated and I would like to commend PSI Paul Thompson for his diligence throughout. My thoughts remain with Julian’s family.”

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Police patrols after multiple anti-social behaviour reports in Bangor

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Belfast Live

It follows a number of incidents over the last number of weeks.

Police are investigating multiple reports of anti-social behaviour in Bangor over the last number of weeks.

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It was reported on Monday, March 16 that a number of teenage boys entered a retail premises on Main Street in the Co Down city where they threatened to assault a staff member and caused a disturbance.On Friday, March 20 two reports were received, in one it was reported that a teenager had been verbally abusive and thrown food items towards staff and customers in a business premises in the Main Street area. The PSNI says it’s aware of a video circulating on social media of this incident.

READ MORE: Woman’s body recovered from River Lagan as family of missing person notifiedREAD MORE: Amy Doherty: Police name 28-year-old Derry murder victim

In the other, youths entered a retail store, throwing items around and in general causing a disruption to workers and those trying to shop.A PSNI spokesperson said: “Officers take all such reports seriously, and we recognise the wider impact that this kind of behaviour can have on the local community. We are committed to addressing these issues and supporting those affected.“Patrols in Bangor and the wider area will continue, and we are also continuing to work alongside partner agencies and local representatives in order to help resolve any issues.“It is vital we work together to promote responsible behaviour and support a safe environment for everyone. Our enquiries are continuing, and I am appealing to anyone with any information which might help us to get in touch.“You can contact us via 101, or submit a report online via our non-emergency reporting form at http://www.psni.police.uk/makeareport/. Information can also be passed anonymously via Crimestoppers on 0800 555 111 or online at http://crimestoppers-uk.org.

For all the latest news, visit the Belfast Live homepage here and sign up to our daily newsletter here.

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Iranians slam ‘crazy’ Trump as they beg president not to strike power supply

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Daily Mirror

US President Donald Trump has halted strikes on Iranian energy infrastructure amid ongoing talks regarding the conflict in the Middle East – some in Iran say his comments are driving them ‘crazy’

Iranians have issued a plea to Donald Trump as they beg the US President to postpone further strikes on energy infrastructure.

Iran has been in conflict with the US since February 28, when the US and Israel carried out joint strikes on several key Iranian sites. Iran responded by striking sites across the Middle East, plunging the region into conflict. Energy infrastructure has been targeted by both US-Israeli forces in Iran and Iranian forces across the Middle East.

In a post on his social media site Truth Social on Monday, March 23, Mr Trump said that the US and Iran had, over the last two days, “very good and productive conversations” about the resolution of hostilities in the Middle East.

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The post, written in all caps, continued: “Based on the tenor and tone of these in depth, detailed, and constructive conversations, which will continue throughout the week, I have instructed the Department of War to postpone any and all military strikes against Iranian power plants and energy infrastructure for a five day period, subject to the success of the ongoing meetings and discussions.”

Iranians, speaking to BBC Persian, reacted to Mr Trump’s post.

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A man in his 20s, who resides in capital Tehran, said it will be very costly for Iranians.

“Whether the Islamic Republic remains or realises that it is on its last legs, it will increase the cost to the Iranian people as much as possible,” the man said.

A woman in her 40s, also from Tehran, said she believes Trump wants to give the Iranian leadership “another ultimatum”.

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Her theory is: “If they don’t open up the Strait of Hormuz, he will strike because he wants to put pressure on them, either by capturing Kharg Island or by attacking them on land.”

A woman, in her 20s, who resides in the north of the country, said: “Did you see Trump’s new message? It’s driving us crazy.”

Trump also issued an update about Iran’s new Supreme Leader – who the president suggested may be dead. He told reporters the US had not been talking to Mojtaba Khamenei, son of the previous Supreme Leader who was killed in the initial strikes.

“We have not heard from the son,” he told reporters. “We don’t know if he’s living.”

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Trump administration announces new probes into Harvard over race and religion

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Trump administration announces new probes into Harvard over race and religion

The Trump administration has escalated its scrutiny of Harvard University, announcing two new federal probes against the Cambridge, Massachusetts-based Ivy League institution.

The U.S. Education Department’s civil rights office confirmed it “opened two new investigations into Harvard University amid allegations that it continues to discriminate against students on the basis of race, color, and national origin” in violation of federal law.

These latest inquiries will specifically examine whether Harvard employs race-based preferences in its admissions process, following the U.S. Supreme Court’s 2023 ruling that ended affirmative action in higher education. Additionally, the department will investigate allegations of antisemitism on Harvard’s campus.

This action follows reports released last year by Harvard task forces, which detailed bigotry and abuse faced by Jewish and Muslim students at the university.

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This action follows reports released last year by Harvard task forces, which detailed bigotry and abuse faced by Jewish and Muslim students at the university
This action follows reports released last year by Harvard task forces, which detailed bigotry and abuse faced by Jewish and Muslim students at the university (AP Photo/Steven Senne)

A Harvard spokesperson said on Monday that the school is “firmly committed to confronting antisemitism” and has taken steps aimed at “preventing harassment and discrimination.”

Harvard does not discriminate on grounds of race, the spokesperson said, and complies with the law in admissions practices, including the Supreme Court’s 2023 decision.

“We are reviewing the U.S. Department of Education’s latest actions, which represent the government’s latest retaliatory actions against Harvard for its refusal to surrender our independence and constitutional rights,” the spokesperson said.

A deal to resolve the Trump administration’s probes against Harvard remains elusive.

Last week, the administration sued Harvard to recover billions of dollars over allegedly failing to protect Jewish students. The Trump administration also separately sued Harvard in February, accusing it of failing to comply with a federal investigation, while also seeking documents to determine whether the university considered race in its admissions process.

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Education advocates have urged universities to push back against government efforts to collect more admissions data, saying they could lead to privacy violations. A former official from President Joe Biden’s administration described it as “a tool for anti-civil rights enforcement.”

Campaign against top schools

U.S. President Donald Trump has attempted to crack down on universities and freeze their federal funds over pro-Palestinian protests against Israel’s assault on Gaza, transgender policies, climate programs and diversity initiatives, leading to concerns over academic freedom, free speech and due process.

Efforts to freeze federal funds have faced legal and judicial roadblocks.

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Trump has in particular cast pro-Palestinian protests as antisemitic and alleged that universities, including Harvard, allowed antisemitism on campus.

Protesters, including some Jewish groups, say the government wrongly conflates criticism of Israel’s assault on Gaza and its occupation of Palestinian territories with antisemitism, and advocacy for Palestinian rights with support for extremism.

Trump’s administration has reached deals to settle investigations against some schools including Columbia University in New York. Columbia has agreed to pay over $200 million to the government.

Academic experts have raised alarm over parts of those agreements, saying they set a precedent for “pay-to-play” deals.

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Trump has not initiated equivalent probes into allegations of Islamophobia and anti-Palestinian bias.

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Scots food stall couple ‘luckiest alive’ after terrifying M8 incident

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Vincci, owner of Smoked Tamago, was travelling home from Glasgow before the nerve-wracking ordeal.

A Scots caterer has revealed the terrifying moment her car trailer started swinging while driving on the M8. Vincci, owner of Smoked Tamago, was travelling home from Glasgow before the nerve-wracking incident on March 15.

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She was driving her car normally near Junction 3 around 4pm when, due to windy weather conditions, her trailer started to swing. All of a sudden, she lost control and her trailer tipped over, bringing her journey to an abrupt halt.

She said the trailer had started dragging her motor, which she and her fiancé, who was with her at the time, travel across the country selling their Japanese Korean street food.

Vincci said they are the “luckiest couple ever” after the ordeal, which she believes “could have been so much worse”. She told Edinburgh Live: “We were driving like normal and then all of a sudden, my trailer started swinging.

“I tried to slow down but then it just dragged me. I lost control. I have been driving for around 20 years so I knew something wasn’t right. I am just so blessed we’re both okay because it could have been so much worse.

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“I just feel like we’re the luckiest couple ever because it was a very scary and unfortunate situation but luck was on our side.”

She went on: “Three minutes after I stepped out the car, a police car arrived because they just happened to be there. There were really slow cars behind but there was one who stopped and asked if we were okay.

“Police helped us get to a safe place because it was on really busy motorway. We are so blessed.”

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The trailer was so badly damaged that the couple had to give it up. They left the scene unharmed and no one else was hurt.

Vincci added: “The trailer got disposed of because it’s not possible to fix it. It’s a big loss but we are just so lucky and grateful that we can get back on our feet and keep doing what we love to do.

“We just want people to know that we are okay and not to worry. It was really emotional but we are alright. We just really want to apologise for all the people that were stuck behind us on the M8 – there was a huge queue.

“All the messages we have received from customers and fellow traders have been so touching because so many people have offered to help us.”

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The couple also shared a statement on social media. They said: “First things first – we’re both okay. Goodbye to our wee trailer, which helped us survive a very windy market day.. but unfortunately didn’t make it home.

“Not long ago we travelled around the country hunting for the right trailer for us. Still remember the joy when we finally found this one, after putting a lot of time and effort into fixing it up and turning it into something that worked perfectly for our stall. And then in just a moment, it was gone.

“But at the end of the day, me and Rick walked away from our car in one piece, and no one else was hurt. That’s what really matters.

“Losing the trailer probably means we’ll miss out on a few plans and opportunities we had coming up, but as we’re still here, we will be able to keep going. There will always be more pop ups ahead.”

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A statement from Traffic Scotland at the time read: “The M8 is currently restricted eastbound after Junction 3 due to a road traffic incident.”

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