Health & fitness
Woman, 34, who put ‘dry cough’ down to flu is diagnosed with one-in-a-million disease that kills half its victims
A MUM’s typical ‘flu’ symptoms turned out to be the signs of a little-known but very aggressive cancer.
Emma Snape, from Lancashire, began to come down with cold-like symptoms in February, which quickly escalated, landing her in hospital.
Doctors at first diagnosed the 34-year-old with pneumonia, a serious and sometimes life-threatening lung infection.
Months later, tests revealed the underlying illness to be epithelioid hemangioendothelioma (EHE), an extremely rare cancer that only affects one in a million people.
It forms in the cells that line the blood vessels and can emerge anywhere in the body.
EHE is most commonly associated with young and middle-aged adults, and is more common in women.
One of the signs is a dry cough that can make breathing difficult.
When Emma was diagnosed, doctors found 20 nodules in her lungs and more in her omentum – the fatty tissue extends from the stomach to the intestines.
The mum-of-two was told her cancer was terminal.
Only half of those who receive a diagnosis will live longer than five years.
She has since been in and out of the hospital for dozens of appointments, as she continued to fight the horrendous condition.
Emma’s twin sister Kym, also a mother of two, said: “[It’s been] heartbreaking to watch her go through this.
“It’s technically a terminal diagnosis as there’s no cure for it. It’s been the hardest year,” the 34-year-old said.
She added: “With her being my twin, it’s been so hard for me not being able to control this situation and make her better as she is literally my other half.”
‘Agonising pain’
Emma, described her sister as “the real superwoman”, referring to her unwavering help in her time of need.
“I don’t know what I’d have done without Kym,” she said.
“From day one after getting my diagnosis she’s been full into research, fundraising, gathering all sorts of different contacts to help me, whilst having her own young family to care for.
“It’s been so wonderfully overwhelming how generous and kind people have been.
“Everyone just wants to help, my work, small businesses, family and friends.
“People really have come together for me.”
Kym said that some days her sister suffers “agonising pain” due to her condition.
“She’s fighting against this disease every day whilst remaining the world’s best mummy to her two boys and partner.’
Kym has set up a donation page to raise money for the EHE Rare Cancer Charity (EHERCC), which is working hard to find a cure.
She has so far raised over £6,000 from big-hearted locals and will take on a sponsored run in November to help pull in further cash.
Kym, said: “I have taken control in the only way possible which is to learn about this disease and to raise money for critical research to take place in the hope of finding a cure.”
Epithelioid hemangioendothelioma: Everything you need to know
Epithelioid hemangioendothelioma (EHE) is a rare cancerous tumor that forms in cells lining your blood vessels, anwhere in the body.
Most tumours appear in your liver, lungs or bones.
EHE is most commonly associated with young and middle-aged adults and is rare in children. It is also more common in women.
EHE is thought to be caused when certain chromosomes (the parts within cells that contain DNA) are broken apart and put back together in the wrong way.
Researchers are still trying to find out why this happens and whether this causes EHE.
Signs and symptoms
Symptoms of EHE can vary depending on the size and location of your tumour.
You may experience all, some or none of these symptoms before you are diagnosed with EHE:
- A lump or swelling in the soft tissue of the body under the skin
- This lump is often slow-growing but can be painful depending on its location. They can also cause bone fractures if the lump is located in or near to a bone
- EHE in the liver can cause stomach pain and weight loss
- Dry cough and difficulty breathing for people with EHE in the lungs
Treatment
The first treatment method for EHE is surgery.
The surgeon will remove the tumour and aim to take out an area of normal tissue too – this is known as “taking a margin”.
This is to make sure that all of the cancer has been removed.
Radiotherapy, chemotherapy, targeted and immunotherapy are also used to destroy cancer cells and stop more cells growing and spreading.
Source: Sarcoma UK
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Health & fitness
Children at greater risk of silent killer after catching Covid, scientists warn – as cases of XEC strain rise
KIDS are at risk of developing type 2 diabetes after Covid-19, more so than any other common cold bug.
The findings come as the UK faces a rise in Covid cases, with one in 10 in England and Wales caused by the new XEC strain.
There is no evidence so far the strain is more deadly, but data from the UK Health Security Agency (UKHSA) shows Covid hospital admissions are rising in England.
Researchers studied more than 600,000 children in the US aged between 10 and 19 years old who had either had Covid-19 or another respiratory infection in the first three years of the pandemic.
The risk of a new diagnosis of type 2 diabetes was significantly higher in the Covid-19 group from one month after infection.
They had around a 50 per cent higher chance of diagnosis one to three months after infection, jumping to 58 per cent at six months.
Read more on Covid and bugs
The risk doubled in children classed as overweight or obese, according to the findings published in the journal JAMA Network Open.
Whether the odds of a new diagnosis persist for longer than six months was not studied by the team at Case Western Reserve University School of Medicine, Ohio.
The researchers said type 2 diabetes was already reported as increasing among children – largely due to the obesity epidemic.
Parents have also anecdotally talked of their suspicions that their children’s brush with Covid let to their type 2 diabetes developing.
Type 2 diabetes is often referred to as a ‘silent killer’ because symptoms – such as going to the toilet more often or feeling tired – can often be assumed as common ailments.
It does not directly kill those who have it but can lead to conditions such as heart disease and stroke, as well as problems with vision, kidneys, and nerve damage.
More often than not, the condition is triggered by poor lifestyle habits like eating too much unhealthy food or not exercising.
Several research teams have shown that adults face an increased risk of diabetes diagnosis after contracting Covid-19.
For example, Canadian scientists said that those who have had Covid are more likely to develop new-onset type 2 diabetes.
However, a study of Brits by King’s College London suggested that after three months, the risk declined back to baseline levels.
Diabetes diagnoses were increased by 81 per cent in acute Covid-19 and remained elevated by 27 per cent from four to 12 weeks after infection, according to findings published in PLOS Medicine.
The researchers couldn’t say whether the short-term increase in risk is directly because of Covid infection or if there were undiagnosed cases among those who had Covid.
It comes as research last week suggested Covid “doubles risk of heart attack, stroke or dying up to three years later”.
Data from more than 10,000 Brits aged over 50 years revealed the danger is even higher among people with blood types A, B or AB compared to those with type O.
None of the participants were vaccinated at the time of infection because Covid-19 jabs were not yet available.
How can you prevent your child developing type 2 diabetes?
Factors such as ethnicity can increase the risk of type 2 diabetes.
But living with obesity and overweight is thought to be behind the rising number of children with type 2., says Diabetes UK.
If your child is very overweight, the NHS says there are things you can to help them get to a healthy weight.
This includes upping exercise, keeping portions to child-sized, and eating healthier foods.
Exercise doesn’t need to be any more than playing “it”, riding a bike, swimming or using a playground, so long as they are happy and moving.
“All children need about 60 minutes of physical activity a day for good health, but it doesn’t need to be all at once,” the NHS says.
Food wise, children should avoid eating too much of the same things that cause weight gain in adults – sweets, chocolate, crisps and cakes.
It’s important that as a parent, you also act as a good role model and try and get the whole family involved, so it doesn’t feel like your child is targeted.
It can be a scary time if your child is diagnosed with diabetes, but doctors will be there to support you.
Your child will get a treatment plan that you as a parent will be involved with administering – including insulin injections.
You will also have to keep a close eye on your child’s glucose levels to make sure they don’t become dangerously low or high.
On top of this, children with diabetes will need to eat a healthy diet and exercise is considered “incredibly important”, Diabetes UK says.
Symptoms of type 2 diabetes in children
The most common symptoms of type 1 and 2 diabetes in children are:
- Toilet — Going to the toilet a lot to pass urine, bed wetting by a previously dry child or heavier nappies in babies. Getting up in the night to go to the toilet.
- Thirsty — Being really thirsty and not being able to quench the thirst. Your child may ask for a drink more often, finish drinks very quickly or you may notice they generally drink more.
- Tired — Feeling more tired than usual. Having less energy than normal, not playing as often, less energy for sports
- Thinner — Losing weight or looking thinner than usual.
You may also notice your child getting more infections than usual.
Health & fitness
Risk of bird flu combining with seasonal flu to create mutant strain is 5 times higher – raising ‘pandemic’ fears
THE risk of bird flu merging with seasonal flu to create a dangerous mutant strain is now very high, experts have warned.
They fear the new bug could be as lethal as bird flu and as transmissible as regular flu, giving it the potential to cause a pandemic.
When two viruses infect someone at the same time, they can mix and create a new, possibly more harmful variant, through a process called reassortment.
The risk of bird flu reassorting this winter will be five times higher in the winter, compared with the summer, according to preliminary modelling by analytics firm Airfinity.
Bird flu, specifically the H5N1 strain, has been spreading through cattle herds and poultry this year.
At least 17 people have been infected with H5N1 strain in the US this year – almost all of them poultry or dairy workers who had direct contact with sick animals.
Bird flu has a high mortality rate, but currently spreads ineffectively between humans, making it less of a threat.
But if it were to reassort with a more transmissible flu variant like seasonal flu it could become better at spreading among people, which might cause major outbreaks, experts at the data firm warn.
The likelihood of dairy and poultry workers also being infected with seasonal flu rises in winter, when flu cases rise natually.
Infections always surge in colder months largely due to colder temperatures, indoor crowding, and weakened immune systems.
On top of this, early data from the US Centre for Disease Control (CDC) suggests the effectiveness of the 2024 flu vaccine to be as low as 35 per cent.
Coupled with a low uptake of the jab, which would leave more people at risk, these factors raise the likelihood of reassortment taking place, said Connor Browne, a biorisk consultant.
“The combination of a lower-than-expected efficacy for this year’s flu vaccine and the likelihood that uptake of the vaccine could well be lower than in previous years increases the chances of a H5N1 reassortment event occurring through coinfection,” he said on X, formally Twitter.
Reassortment has been behind most, if not all, historical flu pandemics, including the 2009 ‘swine flu‘ pandemic.
This particualr strain, called H1N1, was a combination of avian, swine, and human influenza viruses, which led to a new variant which was able to spread rapidly.
It led to the deaths of an estimated quarter of a million people and infected up to 21 per cent of the global population.
Bird flu is already on the World Health Organisation’s (WHO) list of diseases with pandemic potenital, along with Ebola, Dengue and the black death.
Dr Angela Rasmussen, a virologist at the Vaccine and Infectious Disease Organisation, told a press conference on Thursday that the US needs to focus on “access to testing, getting vaccines to people with high-risk occupational exposure, and answer some of the basic science questions – like how the virus is being transmitted between cows”.
Bird flu: Could it be the next human pandemic?
By health reporter, Isabel Shaw
BIRD flu is running rampant in wildlife around the world and is now spreading in cows.
This increase in transmission has given the virus lots of opportunities to mutate – a process where a pathogen changes and can become more dangerous.
Scientists fear it’s only a matter of time before one of these mutations makes it better at spreading among mammals – and potentially humans.
Some experts believe the virus could already be spreading among some animal species.
So far, there is no evidence that H5N1 can spread between humans.
But in the hundreds of cases where humans have been infected through contact with animals over the past 20 years, the mortality rate is high.
From 2003 to 2024, 889 cases and 463 deaths caused by H5N1 have been reported worldwide from 23 countries, according to the World Health Organisation.
This puts the case fatality rate at 52 per cent.
Leading scientists have already warned an influenza is the pathogen most likely to trigger a new pandemic in the near future.
The prospect of a flu pandemic is alarming.
Although scientists have pointed out that vaccines against many strains, including H5N1, have already been developed, others are still in the pipeline.
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Health & fitness
Woman, 31, ‘left to fend for herself’ on A&E trolley for 12 HOURS while coughing blood’ before she died, inquest told
A WOMAN died after she was left “fending for herself” on a hospital trolley in the corridor of an A&E for 12 hours, an inquest has heard.
Tamara Davis, 31, was left coughing up blood and was “abandoned in her most vulnerable moment” when she died of sepsis in December 2022.
She had been rushed to Royal Sussex County Hospital in Brighton after complaining of breathing difficulties.
Tamara was subsequently placed in a side room and given oxygen, but was later moved into a corridor when another patient needed the room.
Despite her condition becoming progressively worse, she was left on a trolley in the busy corridor.
At one stage there were 20 patients being treated in the hospital corridor.
Eventually a medical team was called and she was rushed through to intensive care, but she later died.
An inquest today heard she had been failed by a healthcare system stretched to the limit.
In a statement read to the court, her sister Miya said: “‘In the few hours [she was in A&E] she was being made to fend for herself.
“She was abandoned in that corridor at her most vulnerable moments, coughing up blood and suffering from diarrhoea.”
Dr Andrew Leonard, the consultant who treated Tamara in the corridor, said: “Anyone being looked after in a corridor is a concern because it is a failure of normal care processes.”
He said the statements from the family about how they felt Tamara had been failed were “heartbreaking”.
The doctor added: “Unfortunately we live in a world where more corridor care has become increasingly the norm in the last few years and that is a tragedy and not something any doctor or nurse would say is a good idea but is a result of pressures on the system.”
He said he was “unhappy” Tamara had to receive treatment in a corridor, but added that there was “nowhere else to put patients”.
Tamara had been suffering from cold-like symptoms and breathing difficulties before she collapsed at home on the evening of December 10, 2022.
Her partner Raphael Ifil desperately called 999 five times to try and get an emergency ambulance.
But after failing, he got a friend to drive Tamara the three miles to Royal Sussex County Hospital.
She was admitted at 11.14pm and immediately taken through to a resuscitation cubicle in A&E, where she was given oxygen.
But when her vital signs improved and another patient needed the room at 5.30am, she was wheeled out on the trolley into the corridor.
Tamara then spent the next 12 hours on the trolley with other sick patients all around her, the inquest heard.
She had been diagnosed with severe flu and, although she was given antibiotics, paracetamol and IV fluids, a second dose of antibiotics she was due to receive was missed by medics.
Her condition continued to deteriorate throughout the day and she began to cough up blood and suffered diarrhoea.
Her sister Miya had to help her to the toilet and because there was none available and she had to change her soiled sheets.
Tamara’s condition continued to worsen throughout the day and she was eventually taken into back into a resuscitation room.
She was then transferred to an intensive care bed, where she was placed on a ventilator.
Alice Edmondson, a senior nurse on duty at the time, said: “We’d never move anyone to a corridor out of choice. Nobody should be nursed in a corridor.
“I really want the family to know that I as a senior nurse feel upset every day that people are in the corridor when they shouldn’t be.”
Tamara’s condition deteriorated in intensive care and she died of sepsis and multiple organ failure on December 13.
Her heartbroken family have previously said Tamara was “failed” by the hospital and died after ‘disgusting’ treatment.
They say Tamara had been left without “dignity” and said the care she received was “dreadful”.
Previously Dr Andy Heeps, Chief Operating Officer at University Hospitals Sussex NHS Foundation Trust, said: “I cannot publicly discuss Tamara’s care, but in general terms it is undoubtedly the case that our staff sometimes have to work under significant pressure, in difficult circumstances, but they will always do their very best to give care, compassion and dignity to their patients.”
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