Autistic children’s school difficulties aren’t reason to cut support

UK-based autism charity Ambitious About Autism has released results of a survey which show that one in six autistic pupils have not been to school since the beginning of this academic year. They polled nearly one thousand young people and their families, finding a variety of reasons for their absence.

One thing is crystal clear: the consistent factor amongst the reasons for absence is the hostility caused by the school system and the government failing disabled students. 62% cited mental health issues, and a fifth said their school was not suitable.

For autistic people who have made it through to the other side of education, these statistics are entirely unsurprising. Schools are hostile environments in more ways than one, based in both the sensory and the social. Fluorescent lighting, loud echoing hallways, and intense dining room smells are just a few of the offensive sensory inputs that all combine with the heavy load of masking needed in order to try to fit in, navigate harsh rules, and attempt to focus on your work.

Autistic children are not your scapegoat

In the survey, 45% of the respondents said they felt blamed by the government for the absences. This should be validated, seen through the endless attacks on autistic people and their families to make the public see them as the enemy of the working class for needing more funding and support.

Neoliberalism sees these children as inconvenient. Not only do they cost more money, they cannot fit into the cookie-cutter system meant to spit out adults who are ready to assimilate straight into a workplace. This is where ableism is shown to be deeply intertwined with capitalism, where anyone who does not fit the mould is seen as a problem.

You may have heard autistic people referred to as ‘canaries in the coal mine’ before. This is the idea that we are the first to see threats or distress, which should be seen as a warning of something more systemic that will come to affect everyone. In the neoliberal education system, autistic children fit this: these environments are not truly built for anyone, and the higher levels of distress faced are only indicative of the fact that all children are being treated in a way that is problematic and misaligned with their needs.

This is a crucial moment for SEND support

This survey comes at a point in time where the government is planning to reform the special educational needs and disabilities (SEND) system. This proposes that it will improve outcomes for disabled children, but those more cynical can argue it is a money mission.

The reforms are apparently aiming to address delays and poor outcomes – and, of course, ‘unsustainable costs’. At this stage, Education, Health and Care Plans (EHCPs) are apparently not being scrapped, but it appears that schools will have their own responsibilities around assessment. This is significantly concerning due to lack of expertise and the possible lack of accountability.

It should not matter that more children than ever fall into the SEND category or need EHCPs. Every single individual deserves access to the support they need, whether that is in a specialist setting or in mainstream, where 70% of (diagnosed) autistic children are educated. We need more specialist settings where autistic children can thrive in environments that are built for them, with the right transport, properly trained staff, and supported transitions. 20% of those surveyed were out of school due to unsuitable school placement.

If schools were changed at a fundamental level, given an entirely different culture, accommodating many autistic young people would still be necessary but could become an easier task. Softer sensory environments, more regulated nervous systems and social support help every child regardless of their need. We will always need individual accommodations, and many autistic children will still need specialist support, but the current system sets everyone up for failure.

This is a critical moment in how we see, hear and support autistic children and their families. They deserve holistic care, in the right environment, and an inclusive system. The focus remaining on money is not the answer.

We have to take autistic children and families seriously

While Ambitious About Autism is using these statistics to raise awareness of why non-attendance occurs for autistic young people, mass media has latched onto them to fuel their debates on the lives of disabled people. Many of the discussions are intentionally inflammatory and lead to further stigma for autistic children and their families, who are simply trying to survive a system that is built to work against them.

Terms like ‘school refusal’ and ‘non-compliance’ are thrown around constantly. The implication is heavily that this is a choice, that young people are simply acting up or their parents should just be parenting better. That is not the reality faced by thousands of families. They have been abandoned by the system and are having to fight every day, often losing their jobs or income as collateral.

Mental health crisis, autistic burnout, and exclusions are almost normalised when it comes to autistic children and young people. It should not be seen as acceptable that huge swathes of children are being failed.

There is a deep irony at how many people on the right use ‘we need to look after our own’ to justify their bigotry, until it is disabled children and parents who are drowning in a system that refuses to care.

This survey should prove the gaps we know exist, not justify the perpetuation of horrific narratives which target such a vulnerable group. Autistic children and their families are not asking for too much: simply advocating for something that is their right.

Featured image via the Canary