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3 hours ago

5 March 2026

NewsAdmin

Alexion and the Wolves Foundation unite for Rare Disease Day to spotlight conditions affecting 1 in 17 people through a community football programme

Rare diseases affect approximately 3.5 million people in the UK – with 1 in 17 impacted by one of the 10,000 known rare conditions at some point in their lives – a collective prevalence similar to cancer.^1,2 However, with each rare disease affecting so few people, these conditions are often overlooked.

Many rare conditions are life-limiting or life-threatening, making access to a timely diagnosis, expert care and effective treatment critically important. In healthcare systems geared towards more common diseases, it can be difficult for people with rare diseases to navigate and access the specialist services they need.³ This results in poor health outcomes and experiences of care – challenges that have been reflected in the UK Rare Disease Framework since 2021, with work underway to measure its impact.⁴

In late 2025, health ministers from all four nations agreed to extend the UK Rare Diseases Framework by one year through to February 2027.⁵ Over the next 12 months, it is critical that this time is used to determine the long-term priorities for the rare disease community, those specific areas where national policy and coordination can make the most meaningful impact, and how best to track progress.

Every year, Rare Disease Day takes place on 28th February – or 29th February in leap years to coincide with the rarest of days – to raise awareness of all rare conditions. Work by patient organisations underlines how low awareness of rare conditions makes it harder for others to relate to their experiences. As a result, empathy, understanding and support can be harder to find.⁶

For Rare Disease Day 2026, Alexion, AstraZeneca Rare Disease and the Wolves Foundation have partnered to raise the visibility of rare diseases and support the foundation’s disability football programme and the Wolves Wishes initiative.

Wolves Wishes organises memorable club-related experiences for fans facing health challenges. The Premier League fixture between Wolverhampton Wanderers and Aston Villa, which took place on 27th February, featured the disability teams playing at half-time to mark Rare Disease Day.

The team wore a kit they had designed themselves, reflecting the diverse and unique nature of rare conditions. They showed their skills and beat the Aston Villa team 1-0, with both home and away fans united in their support for these important players and cause.

Through the partnership, Alexion is supporting the foundation’s eight disability teams by providing new kit for the players and backing the Wolves Wishes project.

Sporting the new kit for the under-16s at Wolves Disability FC

“This partnership reflects our shared values of equity and inclusion, while raising awareness of rare diseases with a broad audience,” said Deborah Richards, Managing Director of Alexion, AstraZeneca Rare Disease UK. “Rare diseases often bring challenges that aren’t always visible, but they have a clear impact on those they affect and their families. Through this partnership, we can help make rare disease more visible and build greater understanding within the football community and beyond.”

“Our disability football and Wolves Wishes programmes are built on years of evidence showing how sport and local communities can transform lives,” said Kieron Ansell, Head of Business Development at the Wolves Foundation. “Through our partnership with Alexion, AstraZeneca Rare Disease UK, we can continue this important work while also shining a light on rare disease awareness. It shows that local children and families are seen and valued, and that their health challenges are recognised beyond the medical world, which can make a real difference, particularly for those at the beginning of their diagnostic journey.”

To find out more about the Wolves Foundation visit, https://foundation.wolves.co.uk/. To find out more about Alexion, AstraZeneca Rare Disease UK, visit https://alexion.com/worldwide/UK.

This article was developed and funded by Alexion, AstraZeneca Rare Disease.

M/UK/NP/0191 | March 2026

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