The 45-year-old mum was told she needed caffeine to beat the crippling effects
A mum who experienced severe headaches that progressed to vomiting and being “housebound for nine weeks” was diagnosed with a rare neurological condition affecting five in every 100,000 people annually that forced her to consume three coffees, a caffeine tablet and a Coke Zero every day to manage her symptoms.
Sapna Bidwall, 45, an accountant living in Milton Keynes, was diagnosed in January 2024 with Spontaneous Intracranial Hypotension (SIH), a type of cerebrospinal fluid (CSF) leak, where there is a small hole in the outer membrane that causes the brain to sag downwards, according to The Brain Charity.
As a result, Sapna started experiencing headaches from the age of 42 in July 2023 that her doctor prescribed physiotherapy for, but her symptoms escalated to migraines, as well as frequent vomiting, nausea, and loss of appetite that led to hospitalisation on December 29. Sapna underwent a series of scans and she was diagnosed with SIH before she was told she could manage her symptoms by consuming caffeine. This can help constrict blood vessels and increase CSF production, according to complex spinal surgeon Gordan Grahovac.
In March 2025, aged 44, Sapna decided to have a thoracic laminoplasty procedure to seal the leak, which is when she found out the hole was 10mm wide. In the aftermath of this three-hour surgery, Sapna said she is 98% recovered and has returned to normal life, including no longer being “caffeine dependent”.
Sapna told PA Real Life: “People really don’t understand what a CSF leak is and patients are ignored. “I know so many people who have been told they’ve just got migraines, when it goes deeper. I feel really sad about that because it’s a condition that people are just so unaware about,” she added.
Sapna said her symptoms came on without warning in July 2023 while on a family holiday in Croatia with her husband, Palvinder, and her daughter, Diya, 13. She said she assumed it was “just dehydration”, but she felt “really sick” the next day with nausea and ended up vomiting.
Trying to persist with the holiday, Sapna attempted a 45-minute hike that she “really struggled” with so she “went to lie down” and that is when she noticed her symptoms were much better. She didn’t realise it at the time, but CSF leak symptoms are usually “remarkably worse when standing or sitting upright and lessen or disappear when lying flat”, according to The Brain Charity.
The headaches persisted after Sapna returned to the UK so she went to her GP, who referred her to a physiotherapist. The sessions “weren’t really helping” and at this stage, Sapna believed her condition might be menopausal or from using her phone before bed.
Sapna went on two more holidays – Tanzania in October 2023 and the Turks and Caicos Islands in December – where she noticed her symptoms would worsen. During the latter, she said: “I think it was day two when I went on the water slides there and then I woke up the next day and I felt my head was blasting.
“It was really quite bad and intense and that’s when I thought there must be something seriously wrong. Luckily, because I was lying down a lot, I managed to get back to the UK, but I wasn’t feeling right.”
By December 29 – just days after returning from holiday – she was still “really struggling” so she went to her GP and said: “My head is bursting and there’s definitely something wrong. I feel there’s a tumor.”
Sapna’s GP advised her to go to A&E, where she said she was admitted and had a CT scan and two MRIs over the course of a week. On January 2, 2024, Sapna was told that she had “brain sag” and received her diagnosis of spontaneous intracranial hypotension, which she was advised could be helped with rest and caffeine.
Sapna thought to herself at the time: “What sort of condition encourages you to have Coke?” She added that she “never used to drink a lot of coffee” then, so she decided to take that up.
“I started realising, if I’m having caffeine towards the end of the day, around six o’clock, I’m not waking up with a headache,” Sapna said. “So I started making all these adjustments to make myself better.” Sapna was also encouraged to stay at home for at least nine weeks to see if her condition improved, which she described as “like being in prison”.
During this time, Sapna looked up her SIH diagnosis online and found a Facebook group for people with CSF leaks, where she began “asking so many questions” for support. It was through this group that she decided to see a private consultant neuroradiologist named Lalani Carlton Jones in March 2024.
After two myelograms – an imaging test that uses contrast dye to identify where in the spine the leak originates from – Dr Carlton Jones referred Sapna to consultant neurosurgeon Dr Grahovac. In June 2024, Dr Grahovac looked at Sapna’s tests and said her leak was “really small” and that it “might self-heal” so he recommended just monitoring it.
Three months later, a follow-up MRI revealed it was still leaking, so Sapna had to decide if she wanted to go through with spinal surgery. Sapna said: “It was now a year after my headaches started and I was still suffering.
“If I didn’t have caffeine, my life was just not possible. I was caffeine-dependent.”
So Sapna took some time to weigh up the risks of the thoracic laminoplasty surgery and decided to go ahead with it in March 2025. Sapna said she “wasn’t nervous on the day” because she felt “110% confident” in Dr Grahovac.
After the three-hour successful surgery, Sapna said she found out her leak was 10mm but that she was a “functional leaker”, meaning she was “still able to do so much” compared to other people she has spoken to via her Facebook support group.
The next day after her surgery, Sapna woke up and was surprised to not have a headache, especially because she had not had any caffeine. My whole journey after surgery has been brilliant,” Sapna said. “I have never, ever woken up with a headache.”
As for her caffeine intake, she said: “I’m not caffeine dependent anymore, but I’ve now got a taste of coffee, so I do like having one every now and then.”
Sapna added: “I can say all the positive words in the dictionary to express my gratitude to Dr Carlton Jones and Dr Grahovac. I know I’ve got life because of them and I have a second chance. It’s like I’ve won a lottery.”

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