The Scottish Parliament’s Health, Social Care and Sport Committee published a report on Monday which outlined problems those with ADHD and autism face to access pathways to assessment and support.
Rutherglen’s MSP has spoken out over a national plan to support people with attention deficit and hyperactivity disorder (ADHD) and autism.
The Scottish Parliament’s Health, Social Care and Sport Committee published a report on Monday which outlined problems those with ADHD and autism face to access pathways to assessment and support.
Rutherglen MSP Clare Haughey is the committee convener and stated their inquiry “shone a light on the myriad issues those with neurodevelopmental conditions face in accessing and receiving support from Scotland’s NHS”.
She said: “We acknowledge the huge rise in demand for assessment and diagnosis, and the huge pressure this places on services.
“But we are concerned that inconsistent care pathways and a lack of support can leave some feeling isolated and unable to access the support they need.
“We are concerned to have heard evidence of long waits for assessments or closed waiting lists, meaning some individuals are unable to access support due to where they live or because they haven’t been diagnosed with a neurodevelopmental condition. It’s clear things need to improve.”
The committee is calling on the Scottish Government to deliver a national plan that ensures autistic people and people with ADHD can “access clear, consistent pathways to support” across every health board in Scotland.
It said it expressed concern that many people wait years for neurodevelopmental assessments and that some health board areas have closed waiting lists.
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It emphasised that long waits harm individuals and may prevent people from making a full contribution to society.
Ms Haughey continued: “We’re calling for urgent delivery of a national plan so that autistic people and/or people with ADHD are able to access clear, consistent pathways to support regardless of where they live in Scotland.
“We’re also calling on the Scottish Government and health boards to work together to undertake a comprehensive review of the assessment process in order to introduce a national standard for assessments that guarantees consistency and quality of access throughout Scotland.
“Our committee wants to see a whole systems and whole society approach to ensure autistic people and/or people with ADHD can access equitable and timely pathways to assessment, treatment and support across Scotland.
“Thank you to all of the individuals who shared their personal experiences of ADHD and autism with us and helped inform our inquiry.”
The committee welcomed a commitment by ministers to accept the recommendations in the national autism implementation team adult neurodevelopmental pathways report.
The report also noted the Scottish Government’s intention to review implementation of the national neurodevelopmental specification for children and young people through its new taskforce.
It recognised the unprecedented demand for neurodevelopmental assessment and the need to put certain thresholds in place before a referral is made.
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However, it warned this approach can be seen as gatekeeping and can cause delays to accessing assessments and support.
The committee also heard evidence that long NHS waiting times can push people towards private diagnosis at significant cost, risking a two-tier system.
The committee called for a comprehensive review of assessment processes across all areas.
Mental Wellbeing Minister Tom Arthur said: “I welcome the publication of the committee’s report following their inquiry into autism and ADHD pathways. We will now carefully consider their recommendations.
“I am determined to use every lever at my disposal to drive real, meaningful improvements. Demand for neurodevelopmental diagnosis and support has increased significantly in recent years. While a diagnosis can be important, it should never be a barrier to receiving support.
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“A diagnosis is just one part of someone’s experience. What matters most is that people get the right support at the right time.
“That is why on Sunday February 1, I announced a further £3.4 million available in 2025-26 for a range of projects aimed at improving access to neurodevelopmental supports and services, particularly for children and young people.”
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