Sean Carr is taking on the 26 mile challenge for the charity that supported his family since before son Andrew, now nine, was born with spina bifida.
A Scottish Premiership referee is swapping jeers for cheers as he prepares to tackle the London marathon in honour of his disabled son.
Sean Carr, 42, is taking on the 26 mile challenge for the charity that supported his family since before son Andrew, now nine, was born with spina bifida.
The dad is used to being unpopular on the pitch as his second job as a referee and linesman can see his decisions criticised by thousands of fans at top table clashes.
But he has committed to running a second marathon for Spina Bifida Hydrocephalus Scotland after getting a buzz from the “good vibes” brought by the crowds cheering him on at last year’s Edinburgh event.
He said: “When I got to Edinburgh City Centre there were massive crowds cheering you on and I loved that, especially when you can be used to 60,000 people critiquing your decisions.
“It was all positive, good vibes so when I went back to reffing a football match afterwards it took a while for the system to readjust.
“Last year I figured if I ever wanted to do a marathon I needed to do it before my knees and my legs decided I’d had enough so I changed my training to accommodate it.
“I loved the Edinburgh Marathon but my legs were leaden for three or four days and it was about the fourth day, when my legs were finally back to normal, that I got a call from Spina Bifida Hydrocephalus Scotland (SBHS) asking me to run the London Marathon for them this year.
“Thankfully the call came at that time because if it had come on the first three days after Edinburgh I don’t think I would have agreed to put my legs through that torture.”
Andrew’s condition was diagnosed at his 16-week scan. With little information available about the condition, Sean and wife Lynne found the charity online and sought advice.
Sean, who works for a bank in his day job, said: “We came across the SBHS centre in Cumbernauld and they invited us along to one of their family days. Lynne was about 20 weeks pregnant when we went.
“Everyone was lovely. They were all really excited because they hadn’t had a brand-new baby join the group for a long time. Some of the older staff still call him Baby Andrew.”
Andrew was born a month early in December 2016. The couple had been told to prepare that he may need surgery from birth but he was born healthy and well.
Andrew also has a scoliosis, a curvature of the spine, and will need a major operation in the future after which he will need to learn to walk again.
He uses a metal frame on his leg to help support him when he walks and sometimes needs to use walking sticks and a wheelchair.
But despite the challenges of his condition he has defied the odds to become a disabled gymnast, with coaches already tipping him for future Paralympic glory.
Sean said: “Andrew has had spina bifida from day one so he has no other idea how to live his life.
“If he sees his friends doing something he wants to do the same. Sometimes it is not always possible but if he can, he will or will try to use some other method.
“He has a brilliant determination. He doesn’t have an ‘I quit’ or ‘I can’t do that’ mentality.”
Andrew started getting into disabled sport as soon as rules allowed when he turned eight and his talent was obvious. He now competes for the City of Glasgow Gymnastics Club.
Sean said: “It was great because the interest in Andrew was phenomenal. He has never had people fighting over him before.
“Andrew is a wee daredevil. If Andrew can do a somersault, a back flip or climb anything, he’ll climb it and he’ll jump. He doesn’t think about the consequences that he might get hurt.
“They said his upper body strength is phenomenal and they really think he has great potential.”
Lawrence Cowan, CEO at Spina Bifida Hydrocephalus Scotland, said: “We are so grateful to Sean for all the fundraising he has done so far, and we’ll all be cheering him on as he takes on the London Marathon.
“Everyone with spina bifida and hydrocephalus deserves the chance to feel unstoppable. But it’s only through generous donations that we can make that happen for kids like Andrew, his family and so many other people right across the country.
“The money Sean raises will power our work to provide opportunities for understanding, fun and friendship.”
You can support Sean in his marathon bid here.
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