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NewsBeat

Jesy Nelson slams the government for delay in approving SMA testing for all UK-born babies and says ‘it shouldn’t have taken me to come along for this to happen – it’s been going on for years’

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Jesy Nelson has slammed the government for the delay in approving SMA testing for all UK-born babies

Jesy Nelson has slammed the government for the delay in approving SMA testing for all UK-born babies during her appearance on This Morning on Friday.

The mother-of-two, 35, revealed in January her now 14-month-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition. 

And after months of tirelessly campaign, Jesy announced this week that the SMA Type 1 screening test will now be rolled out across the whole of the UK.

However, Jesy voiced her anger at the delay it took for the screening test to be rolled out as she fumed ‘it should not have taken me to come along for it to happen’.

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Speaking to This Morning hosts Dermot O’Leary and Alison Hammond about the ‘bittersweet’ moment, Jesy explained: ‘I don’t know what to say. Yesterday I couldn’t stop crying. 

‘As proud as I feel, it was also a bittersweet moment. At the end of the day, I am super proud. This isn’t just me, this has been going on for years now.

‘I feel so proud that everyone got behind it.’

She added: ‘Wales and Northern Ireland still don’t have it. Why would I stop here? It would feel wrong to just stop at England now.

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Jesy Nelson has slammed the government for the delay in approving SMA testing for all UK-born babies

The mother-of-two revealed in January her now 14-month-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition

The mother-of-two revealed in January her now 14-month-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition 

‘The noise that everyone rallied together, you can’t ignore it. It should have never taken for me to come along to be taken seriously, this has been going on for years. People have being trying to take this to Parliament.’

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Speaking in Parliament before the testing was ruled out, politician Sharon Hodgson said the remaining six laboratories ‘do not currently have the requisite equipment’ for testing. ‘If that changes, more labs could be included,’ she added.

Later Jesy addressed her followers over on Instagram as she reflected on the disappointment of the day and called out Sharon, who is the Parliamentary Under-Secretary of State in the Department for Health and Social Care for the decision. 

She told her viewers: ‘There is factual evidence that this treatment, if given from birth, is completely life changing to a child that is diagnosed with SMA. 

‘If it isn’t, and they get left untreated, there are facts that if your child doesn’t get treatment, they will not see their second birthday. They will die before the age of two. And there were families in that room yesterday that had children that have died from this horrendous disease. 

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‘And we had the Health Minister Sharon give her argument against why it should not be rolled across the whole of England. 

‘So my question to Sharon is, if it’s safe enough for 72 per cent of England to get this tested at birth, then why is it not good enough for the 28 per cent of England to not get tested at birth? How does that make any sense? 

‘Her exact words were, “need to make sure that this does more good than harm”. Please tell me how that statement makes any sense.’

Jesy went on to explain that she spoke to Sharon after the debate and asked her whether she had ever met a child with SMA, to which Sharon said she hadn’t. 

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The singer then showed Sharon a video of sisters Maisie and Amelia, who both have SMA however one was treated from birth and the other wasn’t. 

She explained that they have the exact same diagnosis but one is in a wheelchair but the other is running along, pulling her sister along. 

This week, Jesy announced the SMA Type 1 screening test will now be rolled out across the whole of the UK as a result of her campaigning' (pictured with CEO of SMA UK Giles Lomax)

This week, Jesy announced the SMA Type 1 screening test will now be rolled out across the whole of the UK as a result of her campaigning’ (pictured with CEO of SMA UK Giles Lomax) 

However, Jesy voiced her anger at the delay it took for the screening test to be rolled out as she fumed 'it should not have taken me to come along for it to happen'

However, Jesy voiced her anger at the delay it took for the screening test to be rolled out as she fumed ‘it should not have taken me to come along for it to happen’

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Jesy continued: ‘When I showed her in this video, her exact words were, “Wow, is that what the treatment does? Wow”. She was gobsmacked.’

Sharing the latest update exclusively with the Daily Mail Jesy said she was ‘so proud’ of everyone involved as she celebrated the difference this will make to babies with SMA as she added ‘this is all I ever wanted’. 

Revealing the news, Jesy said: ‘OK, so yesterday I had a phone call with Sharon [Hodgson], the health minister, and James Murray [Secretary of State for Health and Social Care] and they have decided to roll it out across the whole of the UK.

‘It’s an emotional day. I’m still taking it in to be honest. It’s amazing. It’s just mind-blowing. I feel so proud. I just feel so proud of everyone that’s been a part of getting it to this place because now future SMA baby’s lives are gonna look completely different. And that is all I ever wanted.

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‘It will never not be heartbreaking to hear that your child has SMA, but to know that their life will not have to look like this is just amazing.’

Last month, Jesy headed to Parliament for a debate on whether a newborn screening for the disease would be rolled out across the whole of England. 

Devastatingly the result of the debate was not what Jesy and the SMA community had hoped for and the decision remained that only 72 per cent of the country would have access to newborn screening when it is introduced in October, while the other 28 per cent still wouldn’t. 

However the Government have now confirmed the expansion of the scheme that will see hundreds of thousands of babies screened in the roll-out which will begin in October this year. 

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SMA can leave babies unable to sit up, crawl or walk. In the most severe cases, it stops them breathing or swallowing but caught early enough treatment can significantly improve outcomes for affected children.

Testing works through a simple heel prick to collect a small sample of blood from the baby, taken shortly after birth.

The SMA screening evaluation will begin across England in the autumn, and the programme is moving faster than originally planned. 

Labs are set to start testing babies for SMA from October 2026, three months ahead of schedule, after the government committed to speeding up the rollout earlier this year. 

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Secretary of State for Health and Social Care, James Murray, said: ‘No parent should have to watch their child lose the ability to move or breathe, knowing that earlier treatment could have made all the difference.

‘This expansion means babies across England will be tested from birth, giving them the best possible chance of a full and healthy life, and another step in the right direction as we do all we can to reduce health inequalities.

Jesy said: 'I feel super proud that my girl's story has been a part of change and I can't wait, when they're a bit older and they understand to be able to tell them that'

Jesy said: ‘I feel super proud that my girl’s story has been a part of change and I can’t wait, when they’re a bit older and they understand to be able to tell them that’

‘I’m in awe of the campaigners who’ve worked tirelessly to raise awareness of this rare but very serious genetic condition. We’re moving faster and rolling screening out more widely to ensure children get the best treatment from the earliest possible moment.’

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Meanwhile Chief Executive Officer of SMA UK Giles Lomax said: ‘After years of campaigning by the SMA Community and our partner organisations, this is a hugely important step forward. 

‘When newborn screening for SMA begins later this year in October, thousands of babies will benefit from earlier diagnosis and access to life-changing treatment.

‘We are delighted to see the confirmation that the remaining six screening laboratories will begin screening from October 2027, this demonstrates a clear commitment to making newborn screening available across England.

‘No family should face a postcode lottery when it comes to a condition where every day without treatment can lead to irreversible loss of motor neurons. 

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‘We are incredibly grateful to the families, clinicians, researchers, supporters and campaigners who have helped us reach this point, and we look forward to the day when every newborn across the whole of the UK is offered this simple, life-changing test.’

What is spinal muscular atrophy?

Spinal Muscular Atrophy (SMA) is a disease that weakens a patient’s strength by affecting the motor neuron cells in the spinal cord.

It results in gradual muscle wasting and the severity of symptoms varies by type.

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Type 1 SMA is the most severe and is evident at birth. The weakening of muscles means sufferers cannot sit and usually leads to death by the age of five.

Type 2 is intermediate with the sufferer being unable to stand.

Type 3 is mild and makes it difficult to get up from a sitting position.

Type 4 sufferers don’t have symptoms until they are in their 20s or 30s.

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Ruthless plotter or dad dancer? Insiders reveal the real Andy Burnham

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BBC InDepth

Burnham is unusual in politics because even colleagues who are furious that he ousted Sir Keir Starmer say he is an affable and decent person.

But does he have the experience and skills to pick Labour’s morale up off the floor, and tackle the deep problems the country has?

One old friend wonders: “He is a lovely bloke, but I just don’t know if he is up to it – that is the honest question.”

Being Mr Nice Guy isn’t enough to be an effective prime minister in a confusing and brutal political era.

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But you can be ruthless with a smile, and Andy Burnham is willing to follow advice from one of the most effective leaders of recent decades – not one of the prime ministers, but Sir Alex Ferguson.

I’m told the former Manchester United boss bumped into Burnham and wanted to chat politics.

He wanted to know why there had been so much bad blood and briefing between Tony Blair and Gordon Brown, saying if he’d been Blair, he would have “got him in a room, and said, you’re either with me, or you can sod off”. The actual phrasing he used was far ruder than that – but you get the drift.

A close ally of Burnham told me: “We might need the Ferguson hairdryer – this is our moment and we might have to tell people, if you’re not with me, well bye, and thanks for your time.”

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England vs France: World Cup bronze final prediction, kick-off time, team news, TV, live stream, h2h results, odds today

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England vs France: World Cup bronze final prediction, kick-off time, team news, TV, live stream, h2h results, odds today

The Three Lions will face Les Bleus in the game that both sides really wanted to avoid this, after coming up short in their respective semi-finals in midweek.

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Young man dies after two-vehicle crash in Doagh

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Belfast Live

“Officers, along with colleagues from the Northern Ireland Ambulance Service attended, however, sadly the motorcyclist was pronounced dead at the scene”

A young man has died following a two-vehicle collision on Friday, the PSNI has confirmed.

The PSNI said it was alerted to a crash between a blue Yamaha motorcycle and a blue Skoda Enyaq in the Ballymena Road area of Doagh at the junction of Deer Park Road at around 1.40pm on Friday.

The Northern Ireland Ambulance Service also attended but the motorcyclist, 26-year-old Jamie Fleming, was pronounced dead at the scene. Mr Fleming was from the Ballyclare area.

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Detective Inspector Stewart, from the Collision Investigation Unit, said: “Our inquiries are continuing and we would appeal to anyone who witnessed the collision, or who may have any information which could assist with our investigation, including dashcam or other footage, to contact the Collision Investigation Unit on 101, quoting reference number 827 of 17/07/26.”

Members of the public can also submit a report online using the non-emergency reporting form at psni.police.uk/makeareport/ or anonymously via Crimestoppers on 0800 555 111 or crimestoppers-uk.org.

A funeral notice for Jamie read: “July 17th 2026 as the result of a tragic road accident, aged 26. Late of Doagh, Ballyclare.

“Deeply loved son of Cathy and Alan, much loved brother of Dan and partner Leah, Lauren and partner Adam, devoted Uncle Jamie of Joseph and Hollie, and dear grandson of Brian and the late Ray. Family and friends are welcome to call at his home from Sunday afternoon onwards.

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“A Service will be held in Antrim & Newtownabbey Crematorium on Wednesday 22nd July at 11.00 a.m. Donations in Jamie’s memory, may be made to Crosskennan Lane Animal Sanctuary online via flemingandcuthbert.co.uk or by telephone (028 9334 4242 Mon – Fri 9.00am – 5.00pm).

“The stories will be told, the laughs will be shared. You’ll never be forgotten.”

For all the latest news, visit the Belfast Live homepage here and sign up to our daily newsletter here.

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Trees left ‘neglected’ and ‘sad-looking’ on recently redeveloped Cambridge road

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Cambridgeshire Live

Residents feel the trees are ‘sad-looking’ and have a lot of overgrowth around them

Residents feel nearly 200 trees planted as part of a major road project have been left “neglected”. The Greater Cambridge Partnership (GCP) recently redeveloped Milton Road, aiming to improve public transport, cycle, and walking infrastructure.

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As part of the project, the GCP planted 199 new trees. Since the project’s completion, some residents feel the trees have been “abandoned”, and say they have been left in an unappealing state.

Naina Cowell, who’s lived on Milton Road for 47 years, said the trees look “neglected”. She said: “I miss the cherry blossoms. I like the road improvements, but it would have been nice if they planted proper things. I think greater thought could have gone into making the road prettier. Trees are important, but they are neglected.”

Another lady, who wished to remain anonymous, agreed and said the trees were “sad looking”. She added: “They vary in size, like some look fairly bushy, but then some are so small. It makes the road look bad, considering it’s quite a big road into Cambridge. There’s a lot a lot of overgrowth around then that could be better cared for. It doesn’t make the road look very appealing.”

Ashwin Patel, who has lived along the road for over 50 years, said the state of the trees “doesn’t look good”. “It’s not a view I want from my office,” he said. He added: “We don’t have complaints about the trees, as long as someone tidies up. But it’s annoying as they need to be tidied up.”

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Andrea, who asked to use only her first name, said the trees look “worse” further down the road. She said: “The project was to make the road better, but I don’t think they thought a lot about the trees and greenery.”

The GCP planted the trees as part of the Milton Road project, but Cambridge City Council now oversees the maintenance of them. A spokesperson for the GCP said it was “sad” to hear about some of the trees along Milton Road.

They added: “When we delivered the Milton Road project in 2024, we planted 199 trees. Last year, we replaced some trees and this year, Cambridge City Council took on the maintenance of the trees. We understand the trees have been added to the City Council’s tree regime and are being managed in accordance with their policies.”

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A Cambridge City Council spokesperson said: “Cambridgeshire County Council owns the trees planted through the GCP’s Milton Road improvement scheme, while Cambridge City Council maintains them under existing highway tree arrangements. Scheme funding covered an initial two years of watering and replacement planting, during which survival rates were generally good. After this the trees entered the city council’s routine maintenance programme.”

The spokesperson went on to say that tree establishment and survival is based on a range of factors, including weather, species, planting stock, and site conditions. They added: “The city council monitors trees within its maintenance programme and considers appropriate management interventions according to their condition and individual circumstances.

“An unusually dry winter and spring, followed by prolonged hot weather, have caused stress to trees across Cambridge, including those on Milton Road. River birch trees appear particularly affected, as larger specimens can be harder to establish despite becoming more drought tolerant over time.”

The council said it will continue to work with the GCP to monitor the trees, including through live monitoring by contractors to when they are watered. They added: “[The council] will consider appropriate measures to support those that remain capable of successful establishment, and assess any failures for replacement, subject to available funding and wider planting priorities.”

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Man Utd XI vs Wrexham: Predicted lineup, confirmed team news, injury latest for pre-season friendly today

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Man Utd XI vs Wrexham: Predicted lineup, confirmed team news, injury latest for pre-season friendly today

The majority of United’s representatives in North America will not feature in the first pre-season fixture of the summer, explaining the absences of Bruno Fernandes, Diogo Dalot, Matheus Cunha, Noussair Mazraoui, Altay Bayindir, Amad, Senne Lammens, Kobbie Mainoo, Marcus Rashford, and of course, World Cup 2026 finalist Lisandro Martinez.

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Boy, 12, mauled to death by crocodile as he washed hands in river

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Daily Mirror

WARNING: GRAPHIC CONTENT Horrifying footage from the scene of the attack in Uttar Pradesh, India, captured the moment 12-year-old Sunil was thrashed around by a killer crocodile

A 12-year-old boy was snatched and hurled around by a crocodile in a deadly attack in front of his uncle as the two knelt down to wash their hands in a river.

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Distressing footage captured the moment the reptile thrashed about with the child clamped between its jaws after rising out of the water in Baundi, in India’s Uttar Pradesh, on July 16. The boy, named Sunil, had been helping his uncle plant rice seedlings that afternoon when he and his guardian stopped at the Ghaghara River on the way to their home in Tikuri to wash their hands and feet.

As the two bathed, the youngster’s leg was snatched by the crocodile, which suddenly emerged from the river and dragged him in, leaving bystanders watching on in horror as he was pulled to his doom.

The 6pm attack took place after Sunil had worked for several hours with his uncle, Vijay Raj Singh, and the two had stopped to wash off dirt they had accumulated during the day. Mr Singh raised the alarm when the boy was dragged under water, and tried desperately to free him from the croc’s grip.

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Locals, one of whom started filming the shock scenes, quickly tried to intervene but to no avail as bricks, stones and sticks failed to stop the predator’s rampage.

Sunil was repeatedly thrashed for some time before the crocodile made a bid to escape, dragging the boy into deeper water before eventually disappearing from sight. Locals quickly mounted a desperate search for the young boy using bamboo poles to try and locate his body in the water.

After several hours of searching, the group was able to recover Sunil’s remains from the water, with his body removed at around 10pm that day.

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Local authorities said his right leg and abdomen had been partially eaten when they found him later in the day, adding that his right leg and lower waist were severely mutilated. TN Maurya, a station house officer from the nearby Baundi police station, confirmed that footage circulating in the aftermath of the attack was real.

Schoolboy Sunil was an orphan who had lost both of his parents some years earlier and was being looked after by his uncle. He is survived by a brother and two sisters

According to local reports, state authorities are set to compensate his remaining family with a payment of 400,000 INR (£3,091) following his death. Forest officials have said they are monitoring the area after the attack, although residents have long used the Ghanghara River waterway for their daily activities despite the continued presence of crocodiles.

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South Africa vs Wales LIVE: Score updates, TV channel and start time

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Wales Online

Steve Tandy has made six changes to the side that lost 35-21 to Argentina in San Juan.

Wing Louis Rees-Zammit replaces Ellis Mee while there is also a new centre partnership with Ben Thomas and Max Llewellyn replacing Joe Hawkins and Eddie James.

There is also a change at outside-half with Dan Edwards selected in place of Sam Costelow.

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Alex Mann returns at blindside flanker in place of James Botham while Teddy Williams replaces the injured Ben Carter at lock.

Freddie Thomas, Tommy Reffell and Reuben Morgan-Williams come onto the replacements bench.

Wales: Murray; Rees-Zammit, Llewellyn, B Thomas, Adams; Edwards, Tomos Williams; Carre, Lake (capt), D Lewis, Teddy Williams, Beard, Mann, J Morgan, Wainwright

Replacements: Elias, N Smith, Warren, F Thomas, Reffell, Botham, Morgan-Williams, Hawkins.

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Transfer news LIVE: Rogers to Arsenal FC, medical booked; Man Utd to make Kone bid; Chelsea, Liverpool latest

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Transfer news LIVE: Rogers to Arsenal FC, medical booked; Man Utd to make Kone bid; Chelsea, Liverpool latest

Tottenham have already spent over £200million this summer and remain interested in further reinforcements, though they have rejected an offer from Newcastle for Lucas Bergvall. Liverpool have tied down Dominik Szoboszlai to a new contract but are targeting a forward signing, or two, amid links to Bradley Barcola. Follow the latest transfer news, gossip and rumours live below!

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Murder investigation launched in Bolton as woman arrested following death of pensioner

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Manchester Evening News

If anyone has any information, CCTV footage or mobile phone footage that may relate to GMP’s investigation you can provide it via the Major Incident Public Portal here: Public Portal.

You can also contact police via 101 or the Live Chat at gmp.police.uk, quoting log 744 of 17/07/26.

Alternatively, you can contact the independent charity Crimestoppers, anonymously, on 0800 555 111.

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Best place to store potatoes to keep them fresh named and it’s not the cupboard or pantry

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Daily Mirror

Potatoes may be a kitchen essential, but keeping them fresh for more than a few weeks can prove surprisingly difficult

Potatoes are among the most versatile vegetables around. Whether you’re after a classic Sunday roast, a hearty potato salad or simple sausage and chips, it’s always handy to have a few spuds tucked away.

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Yet far too often, we head to the larder only to discover they have turned green and sprouted or, even worse, gone soggy and mouldy.

YouTuber Marandia Wright has a surprisingly straightforward, old-fashioned storage technique that could spare you from repeatedly binning bag after bag of rotten spuds. She explains: “Those of you who have grown potatoes know that, when you dig your potatoes up out of the dirt, you can put them in a cardboard box and just put them in a dark room.

“You can go and get them whenever you want them and they’re good all the way through until the next growing season,” she says on her Survival HT channel.

However, Marandia points out that shop-bought potatoes will rarely keep for more than a couple of weeks: “One of the major reasons is the plastic bag,” she says. “This thing sweats, it gets them wet, it starts them rotting and rot starts spreading.”

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The solution, she explains, requires no costly equipment or specialist knowledge — in fact, she insists, “a toddler can do it.”

“This works with any kind of potato,” Marandia says. “Even sweet potatoes, and all you need is a box and some dirt.”

She explains that the first and most crucial step is to remove your potatoes from the plastic bag the moment you arrive home, as the humid environment inside encourages rot: “Another major reason,” Marandia says, “is because they have washed them.

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“When you harvest [potatoes] yourself you do not wash them. You leave them in the original dirt, the original microbes, the things that they grew with are going to help to protect and to preserve them.”

Marandia says that you can restore shop-bought potatoes to a more natural condition simply by removing them from the bag and leaving them somewhere sheltered to dry out: “Make sure there’s no moisture on the skins,” she says, “and then all you have to do is get a cardboard box.”

The following step, she adds, is to gather some soil from your garden and leave it in direct sunlight for a day to make certain it’s completely dry. You won’t need a great deal of earth, Marandia says, just enough to give each potato a light coating.

Finally, Marandia says, you should ensure each potato is kept apart from the others: “You can do this with newspaper by layering them: a potato layer and then a newspaper layer, then another newspaper layer.”

Should you not have sufficient newspaper to hand, she says, extra soil will do the trick, simply using a layer of earth to keep each potato separate.

With this straightforward age-old technique, you can keep a bag of shop-bought potatoes fresh for up to a year — that’s if you can resist tucking in!

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