New legislation is set to be introduced in England with a NI mum calling for the same to be put in place here
A Belfast mum has described the lengths that she has to go to in order to protect her four-year-old son who has a range of life-threatening allergies.
New legislation is set to be introduced later this year in England that will provide greater protections for children who suffer from allergies that will include; schools being required to have dedicated allergy policies , staff training, access to emergency adrenaline auto-injectors and individual care plans for children.
This followed campaigning by the Benedict Blythe Foundation and its founder Helen Blythe who lost her five-year-old son following an allergic reaction in school. Following the introduction of Benedict’s Law in England, she is now working to see further protections put in place in Northern Ireland.
Stephanie Kerr , whose son Caolán has life-threatening allergies to peanut, milk, egg, wheat, cumin, oat, strawberries, passionfruit and penicillin, is supporting the campaign for increased protections in NI and has described what life is like taking care of her four year old son.
She said: “Managing Caolán’s allergies requires constant vigilance from everyone who cares for him. Because he has so many allergies, it is not possible to remove every risk from his environment.
“Cross-contamination is one of our biggest concerns. At home, we use separate utensils, cooking equipment and food preparation areas, as well as designated fridge shelves and cupboards. He also needs close supervision at mealtimes to make sure he does not accidentally eat food that is unsafe for him.
“Ordinary childhood activities require intense planning and risk assessment. Something as simple as eating in a restaurant, travelling or going to a birthday party has to be carefully managed. In school, the risks can come from unexpected places, from milk cartons being used in art projects to food being handed out as a reward.
“Caolán needs his snacks prepared separately for example, he requires his own toaster to reduce the risk of cross-contamination. We have also needed to be vigilant and confirm that all staff in his current nursery setting have undertaken the appropriate training to recognise the symptoms of an allergic reaction, including anaphylaxis.
“Prevention is always the goal, but if an emergency happens, Caolán needs immediate action from the adults around him. In that moment, a quick response can be the difference between life and death.”
Stephanie said she was surprised to discover that certain protections she assumed would be in place to help her son did not exist in Northern Ireland.
She said: “Thankfully, Caolán has only needed his epi-pen once. He ate a piece of cereal that was within reach at daycare and suffered a delayed reaction. We were incredibly fortunate to already be at Accident and Emergency Department when adrenaline had to be administered. It was the worst day of our lives.
“Since then, we have done everything we can to work with teachers, staff and anyone responsible for his care to reduce risk and identify situations that could trigger another life-threatening reaction.
“After being given forms for signature by Caolán’s nursery that outlined they were not required to administer medication but did agree with me that a designated member of staff would – I looked at the Education Authority’s guidance on food allergies and medication more closely.
“What I found was deeply upsetting. While some settings do have trained staff, the current guidance does not place an overarching legal duty on school staff to administer medication, and staff cannot be directed to do so under Supporting Pupils with Medication Needs.
“As a mother, I find it heartbreaking that there is still no clear, enforceable guarantee that a trained adult will always be available to give life-saving medication without delay. Prior to Caolán starting his educational journey I had wrongly assumed that these protections for children would have already been in place and that policies would be designed with the safety and wellbeing of students at its heart.
“The work of the Benedict Blythe Foundation has given families like ours real hope. In England, Benedict’s Law is set to bring in protections from September 2026, including dedicated allergy policies in schools, staff training, access to emergency adrenaline auto-injectors and individual care plans for children with allergies. Children like Caolán deserve those same protections here.”
Helen Blythe from the Benedict Blythe Foundatio said she is engaging with politicians in Northern Ireland in order to try and help bring about change that will help ensure vulnerable children with allergies are protected.
She said: “No family should send their child to school wondering whether they will be safe in an allergy emergency. Benedict’s Law is now moving forward in England, yet many children in Northern Ireland still do not have the same basic protections.
Politicians here have been engaging positively, but children cannot wait indefinitely while reviews continue. Every school should have clear allergy policies, trained staff, and emergency medication available now.”
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